























|
 |
|
The Brain Injury Recovery Network has developed
this site in an attempt to provide practical, actionable advice
for brain injury victims and families. We have just made
some additions to the site and are in the process of adding
more.
Feel free to call us with your questions or
comments toll-free at 1-877-810-2100. |
|
|
 |
|
Traumatic Brain
Injury (TBI) is a leading cause of death and disability
among children and young adults in the United States. Each
year, an estimated 1.5 million Americans sustain a TBI.
That's 8 times the number of people diagnosed with breast
cancer and 34 times the number of new cases of HIV/AIDS each
year. As a consequence:
-
50,000 people die
each year.
-
230,000 people are
hospitalized annually and survive.
-
80,000 to 90,000 people
experience the onset of long-term disability each year.
-
The cumulative
result is that today an estimated 5.3 million people - 2% of
the U.S. population - are living with a permanent TBI-related
disability.
|
|
The risk is highest
among adolescents, young adults, and persons older than 75
years. The risk to males is twice the risk among females.
The major causes of TBI are: |
 |
|
-
Motor vehicle
crashes account for 50% of all TBIs and the leading cause of
TBI resulting in hospitalization.
-
Violence,
especially suicidal behavior and assaults that involve
firearms--the leading cause of TBI-related death.
-
Falls--the
leading cause of TBI among the elderly.
|
|
|
These
injuries have both short-term and long-term effects on
individuals, their families, and society and the financial
cost is enormous. TBIs requiring hospitalization cost the
nation about $56.3 billion each year. Approximately 1 in 4
adults with TBI is unable to return to work one year after
injury. The financial cost is only part of the burden. The
long-term impairments and disabilities associated with TBI are
grave and the full human cost is incalculable. |
|
The people
behind the statistics can tell of the terrible devastation to
their lives that a brain injury brings. Our daughter Ashleigh
is one of those victims. She had just finished the last of her
final exams for her senior year in high school on May 28th,
1999. She and her cousin, also a senior, went to a local
sandwich shop to celebrate their last day of high school. On
the way home, their car went off the road and flipped,
end-over-end. Ashleigh suffered multiple skull fractures and
a very severe brain injury. |

At one point
we were told she had only an hour, maybe two, to live.
Thankfully, she made it through that crisis and survived the
critical phase. Ashleigh spent three weeks in the ICU and was
hospitalized for a total of six months following the
accident. We chose not to follow doctor’s advice to place
Ashleigh in a nursing home, and she is now at home with us.
People ask our family how can we deal with this tragedy and
the answer is simply, we have to. |
|
Calling on an
inner strength and an unbelievable sense of determination and
will, Ashleigh continues to fight to improve every single
day. The recovery process is agonizingly slow and measured in
minute steps. It continues to be a few steps forward, a few
steps back. At this point, Ashleigh is still very
significantly disabled with limited movement and unable to
speak. Yet, we consider ourselves one of the lucky ones as
there are many other victims in worse circumstances. |
 |
|
Sadly, there
is no cure for a brain injury. Recovering from a brain
injury relies on the brain’s plasticity, the brain’s ability
for other areas of the brain to take over the functions for
the damaged areas, and on hard work from the patient and the
rehabilitation team to strengthen the remaining abilities to
maximize functionality. |
|
Medical
treatments and procedures do continue to improve and
doctors
have been
able to increase the survival rates for brain injury victims.
Some new drugs and procedures, which have to be employed
quickly after the injury, are aimed at limiting the secondary
damage caused by brain swelling and brain cell death that
exacerbate the initial injury. In a longer-term outlook,
stem cells may hold some promise for actually repairing areas
of brain damage. Yet, even with all the advances, still
relatively little is known about the brain, the body’s most
complex organ. |
 |
|
Frankly, your
loved one is depending on you. You now have to fight through
your grief and step up and take charge of the situation. You
may be asked to make a number of decisions for your loved
one. So, you need to learn all you can, very quickly, to be
able to assist the medical team in setting the best course of
treatment. You need to be a strong patient advocate to insure
they get the best of care possible. You need to maintain a
positive attitude and instill that attitude in both the
patient and everyone in contact with them. If it is indeed
possible, you want to will your loved one to make it
through this crisis.

If your loved
one survives the crisis phase, you will have to continue to be
a positive, supportive, and strong advocate. Recovering
from a brain injury is a long, terribly difficult process.
It is up to you to see that your victim is given every
opportunity to fully recover. |
 |
|
If you are
friends of a family going through this situation don’t be
afraid to call and talk to them. Believe me, the families are
thinking about their loved one all of the time, you are not
going to make it worse by asking about them. |
 |
If
you don’t know anyone directly, there are a couple of ways to
help. One way is to volunteer and get to know a family with a
brain injured victim. You could provide a little respite time
such as reading to the patient so the caregiver can work in
the garden, or go shopping, or even just take a nap. Caring
for a loved can be a highly stressful, 24 hour-a-day job. |
|
Another way
is to help us help others with your financial support. Your
generous donation will let us at the Brain Injury Recovery
Network help victims of brain injuries. |
|
Call our support line for more information
1-
877- 810- 2100
|
|
|
|
|
| |
|