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Long Term Phase
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Acute Facility

As
mentioned before, there are multiple options when it comes to a stay
in a rehabilitation unit. Many hospitals have an in-patient unit and
the natural flow is from the Neuro floor right in to the rehab unit.
There are also some stand-alone rehabilitation centers that are not
associated with your hospital. Some of these units have developed
national reputations for their expertise.
The
goal of these rehab units is to maximize the patient’s current
abilities and to help them learn coping and compensation techniques
for any deficits they may still have. Your insurance coverage will
again come into play to determine what rehab options are available to
you. What we have seen is that you only get so much in-patient rehab
time so make sure you consult with your doctor so he or she can help
you maximize the rehab opportunity.

Depending on where you live you may have a number of rehab units
available to you. In our opinion, experience does matter. Each type
of injury does have its own nuances and the more patients the facility
treats with a similar injury to your own, the better.

Check
to see what equipment the facility has. Having the latest equipment
is not necessarily an indicator that the therapy will be better than
any other place. But, in my mind it might indicate that the facility
has a staff that is being aggressive and staying up with the latest
industry techniques. Also, pay close attention to what equipment they
use with your patient so you know what you will need to try to
duplicate for your rehab set-up at home.

A
couple of the rehab centers I have been in have areas where they have
duplicated parts of the home environment to help patients re-learn
some of the skills needed. One particular facility had an apartment
set up with a bedroom, a kitchen, bathroom, and living room. Patients
practiced cooking or just getting in and out of bed in an attempt to
further prepare them for their transition home.


Each patient’s
condition will vary but it is likely at this point that your loved one
has not been active for weeks now. They come into the in-patient
rehab center and they are expected to actively participate in therapy.
The schedule will probably include all three disciplines, Speech, OT
and PT, twice a day. Some facilities include recreational
therapy which adds more therapeutic activity in a fun format with
crafts and games.
It may take some time
for them to ramp up their endurance. You can help by being there
with them during therapy and helping to motivate them, even when they
are tired. A key to continuing in rehab is the ability to make
progress and meet the goals set. Again, you only get so many
days, so, you want to help maximize every day and every therapy
session.

Part
of the goals for each therapist will probably include goals around
training the family. Make sure you participate and feel comfortable
with the tasks. The more you actually do hands-on the better. It is
one of those things where it seems simple at the time but when you are
home and trying to do something like a transfer by yourself, it is
scary.
For
some patients, once they are up and actively participating in therapy
they make rapid advances. Not to say that there may not still have
deficits, but, considering where you were when they were in the ICU
for instance, this is great.
If
your patient has been more severely injured the advances will be
smaller but you still may find yourself pleasantly surprised. As we
have said before, the more severely injured the patient, the smaller
the increments need to be as you measure improvements. Remember, it
was not very long ago that you probably did not even know if they
would survive.


We
recommend going to as many of the therapy sessions as possible. You
can help motivate your patient and learn the therapy techniques you
will need to continue at home. The staff will let you know their
particular visitation rules. We were always encouraged to participate
as much as possible with our daughter.
Some
rehab units have patient review meetings where the entire team,
including the family, gets together and discusses each patient. They
discuss how the patient is progressing towards their goals and any
modifications to the plan. For you, these meetings are key as they
will decide if the patient continues on in the rehab program. So, you
definitely want to be there and participate.

The
therapy sessions in the hospital tend to be about forty-five minutes
in length. While we had an overall good experience, the quality of
the sessions can vary based on the particular therapist. Most
therapists were ready and worked quickly from start to finish. A few
were late and then took much of the time just preparing for the
session. We were sometimes lucky to get ten minutes worth of
exercise. Added into the mix are the logistics of the transporters
getting the patients from session to session on time. So, the message
is to stay on top of things and if you do not feel you are getting a
full session, ask for more and, if necessary, speak with the doctor.
Remember your rehab days are a scarce resource.

Challenge the rehab team to take an aggressive approach. Ask the
doctor what are all the options available. What about gait training,
standing frame, botox injections, or serial casting? We believe
sometimes it comes down to individual therapists or doctors and their
styles. Let the doctor know that while you want everything to be
safe, you do want to be aggressive.

Take
advantage of the expertise of the physiatrist and the therapists to
help plan the equipment you will need and help develop a plan of care
after you leave rehab. The OT for example, can help explain what you
need to do to make your home more accessible. They can recommend
things like special silverware or plates for eating, or games to buy
that will reinforce movements they want your loved one to practice.
The PT can get your patient fitted with a wheelchair if necessary.
The doctor will set the overall direction and will write the
prescriptions for the specific items the therapists recommend.

Extend the training to others in your family who may be helping you
when you go home. If you are learning how to do transfers, teach the
others in your family how to do it as well. In fact, practice on each
other. It will take away the anxiety that they will have in
practicing on the patient. Have them attend some of the therapy
sessions with you.
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Long Term Phase - Sub Acute
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