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Overview

This is the one piece of advice every person visiting this site should
take to heart. There is always hope. Do not let anyone take that
away from you. Unless and until the person has passed away, there is
always hope.
We have met with too many people that have been told that they will
never do this or never do that again, yet they are doing all of those
things. I spoke with a lady that was pronounced dead at the scene and
the ambulance was on the way to the morgue when one of the paramedics
noticed she was still alive. We know another young woman who was told
she would never walk again who danced at her wedding.
Our daughter is another example. At one point we were told she had an
hour, maybe two to live. We were told she would not get off of the
ventilator and never be able to remove her feeding tube. While we are
still a long way off from where we hope we end up, we are thrilled
that she has proven the doctor’s wrong so far.
 
A trait that seems to be common is that doctors often present a very
negative picture to the family early in the process. My hypothesis as
to why the doctor’s seem to be so pessimistic is that it is their
attempt to prepare you for the worst in case the worst happens. After
all, if the doctor tells you your loved one will never walk again and
six months later they do walk, you are not going to be upset with your
doctor. However, if they say the patient will walk and then they
don’t, you will be upset. The better doctors are able to prepare you
for the worst while still leaving your hope and not breaking your
spirit.
Another reason may be that it is a natural reaction for the family to
resist the bad news they have been given. The doctors may come across
very blunt, and somewhat pessimistic, in order to break through that
defense mechanism from the family.

A factor that makes projecting the long-term outcome more difficult is
that we still really know very little about the brain. It is the
least understood organ in the body. A doctor explained it well to us
when he said that he can tell us with the CAT scans and MRI’s where
the brain has been damaged but he can not tell if other areas of the
brain will be able to take over some of the tasks previously performed
by the damaged area. Recent studies have shown that the brain does
indeed exhibit more plasticity than previously thought.
 
We think you have to act as if you only have one choice. That choice
is to believe and act as if your loved one is going to be completely
healed. You need to make sure they get aggressive treatment all along
the way and get every opportunity to recover. This way if the person
can do better than the doctor’s have said, you have given them every
chance to prove it. But, if they don’t progress as much as you would
like, at least you will have no regrets. Think of the other side -
what if you find that they could do better but you haven’t been trying
because someone told you it wouldn’t matter.
I will give you an example from our experience. We transferred our
daughter to a new facility after we left the hospital. This facility
was going to try to wean her off of the ventilator. A physical
therapist came in to do an evaluation and said he was going to get
Ashleigh sitting up on the edge of the bed. I said I thought that was
a fine goal to shoot for and he said no, I mean tomorrow. Here was
our daughter on a ventilator, unable to move, we were unsure she if
she was even aware of anything going on and he is going to sit her up
on the edge of the bed? Well he did, and before long they were
standing her with a tilt table. My point is we would have never
thought she was ready for that kind of activity. So keep challenging
yourself and your loved one to move forward as aggressively as
possible. Challenge your medical and therapy staff to keep pushing
you as well.

This is the path many patients take on their road to recovery. The
main consideration is that each head injury is different and so each
recovery is different. Below are the general steps:
-
ER –
First, the Emergency Room where
they work to stabilize the patient.
-
ICU –
Next comes the Intensive Care
Unit. Your loved one will stay in the ICU until they move past the
immediate danger.
-
Neuro ICU -
This is sometimes called a
step-down unit. It offers care by neuro-trained nurses who evaluate
whether the patient is ready to move to the general neurological
floor.
-
Neuro floor -
The general Neurological floor is
staffed by specially trained staff to help your patient recover and
prepare to go home.
-
Rehab Unit -
Intensive therapy to help the
patients maximize their abilities and develop compensation
techniques for any remaining deficiencies.
-
Home –
Back home where they will continue
on the long hard road to recovery.


Below is an overview from the National Institute of Neurological
Disorders and Stroke.
What is Traumatic Brain Injury?
Traumatic brain
injury (TBI) occurs when a sudden physical assault on the head causes
damage to the brain. The damage can be focal, confined to one area of
the brain, or diffuse, involving more than one area of the brain. TBI
can result from a closed head injury or a penetrating head injury. A
closed head injury occurs when the head suddenly and violently hits an
object, but the object does not break through the skull. A penetrating
head injury occurs when an object pierces the skull and enters the
brain tissue.
Several types of
traumatic injuries can affect the head and brain. A skull fracture
occurs when the bone of the skull cracks or breaks. A depressed skull
fracture occurs when pieces of the broken skull press into the tissue
of the brain. This can cause bruising of the brain tissue, called a
contusion. A contusion can also occur in response to shaking of the
brain within the confines of the skull, an injury called "countrecoup."
Shaken baby syndrome is a severe form of head injury that occurs when
a baby is shaken forcibly enough to cause extreme countrecoup injury.
Damage to a major blood vessel within the head can cause a hematoma,
or heavy bleeding into or around the brain. The severity of a TBI can
range from a mild concussion to the extremes of coma or even death. A
coma is a profound or deep state of unconsciousness.
Symptoms of a TBI may
include headache, nausea, confusion or other cognitive problems, a
change in personality, depression, irritability, and other emotional
and behavioral problems. Some people may have seizures as a result of
a TBI.
Is
there any treatment?
Immediate treatment
for TBI involves surgery to control bleeding in and around the brain,
monitoring and controlling intracranial pressure, insuring adequate
blood flow to the brain, and treating the body for other injuries and
infection.
What is the prognosis?
The outcome of TBI
depends on the cause of the injury and on the location, severity, and
extent of neurological damage: outcomes range from good recovery to
death. Doctors often use the Glasgow Coma Scale to rate the extent of
injury and chances of recovery. The scale (3-15) involves testing for
three patient responses: eye opening, best verbal response, and best
motor response. A high score indicates a good prognosis and a low
score indicates a poor prognosis.
What research is being done?
The NINDS conducts
and supports research on trauma-related disorders, including traumatic
brain injuries. Much of this research focuses on increasing scientific
understanding of these disorders and finding ways to prevent and treat
them.
Source:
The National Institute of Neurological Disorders and Stroke, National
Institutes of Health Bethesda, MD 20892

Brain injuries can come from a number of causes. Motor vehicle
accidents, falls, sport injuries, near drownings as well as medical
causes such as a strokes, brain tumors, aneurisms, seizure activity,
or infectious diseases.
Brain injuries or head injuries are often classified into three
categories; mild, moderate or severe. The categorization is based on
the Glasgow Coma Scale (GCS) rating, listed below.
-
Mild Traumatic
Brain Injury
Definition: A patient
with mild traumatic brain injury is a person who has had a
traumatically induced physiological disruption of brain function as
manifested by at least one of the following:
-
any period of loss
of consciousness;
-
any
loss of memory for events immediately before or after the accident;
-
any
alteration in mental state at the time of the accident (e.g.,
feeling dazed, disoriented, or confused); and
-
focal
neurological deficit(s) that may or may not be transient but where
the severity of the injury does not exceed the following:
-
loss of
consciousness of approximately 30 minutes or less;
-
after 30 minutes,
an initial Glasgow Coma Scale (GCS) of 13-15; and
-
posttraumatic
amnesia (PTA) not greater than 24 hours.
Mild Traumatic Brain Injury Committee of the Head Injury
Interdisciplinary Special Interest Group of the American Congress of
Rehabilitation Medicine (1993). Definition of mild traumatic brain
injury. Journal of Head Trauma Rehabilitation, 8(3), 86-87.
Be sure to have your
loved one checked out by a doctor if they have any of the symptoms
above. Err on the side of caution.
Most individuals with
a mild brain injury will not have any major functional deficits.
There may be some long term impacts but they are typically more subtle
such as headaches or cognitive or memory problems. Sometimes the
cognitive symptoms are not readily identified at the time of the
injury. Instead, the cognitive symptoms may show up as the person
returns to school or work.
Brain injuries are
classified as Moderate when the GCS score is between 9 -12 and with a
loss of consciousness and/or post-traumatic amnesia of greater than 30
minutes but less than 24 hours and/or a skull fracture.
There may be
long-term physical or cognitive deficits as a result of a moderate
brain injury. Much will depend on the type and location of the
specific insults to the brain. Rehabilitation will help to overcome
some deficits and help provide skills to cope with any remaining
deficits.
A severe brain injury
will present with a Glasgow Coma Scale score lower than 9 and
accompanied by a loss of consciousness or post-traumatic amnesia
lasting more than 24 hours. Severe brain injuries are very
life-threatening. If the person lives, they will typically be faced
with long-term physical and cognitive impairments. The range of the
deficits can vary widely from a vegetative state to more minor
impairments that may allow the person to still function
independently. The patient will require extensive rehabilitation to
try to overcome some of the deficits and learn strategies to cope with
others.
GCS Scale – The
Glasgow Coma Scale (GCS) is the first assessment done with the brain
injured patient. It attempts to give the medical team an initial idea
of the severity of the injury. The assessment is widely used because
it is easily observable and can be pretty consistent. A score of 13
or higher is categorized as a mild brain injury, 9-12 moderate, and 8
or below severe.
|
Chose one
response in each category |
Score |
|
Eye Opening
Response
Spontaneous
To Speech
To Pain
None
|
4
3
2
1 |
|
Best Motor
Response
Obeys Command
Localizes Pain
Flexor
Withdrawal to Pain
Abnormal
Spastic Stereotypes
Flexion
Posture
Extensor
Response at Elbow
No Movement
|
6
5
4
3
2
1 |
|
Verbal
Response
Oriented
Conversation
Confused
Conversation
Inappropriate Words
Incomprehensible Sounds
No
Vocalization
|
5
4
3
2
1 |
|
Total Score
Possible |
3 to 15 |
Teasdale, C., &
Jennett, B. (1974). Assessment of coma and impaired consciousness. A
practical scale. Lancet, 2, 81-84.

A Closed Head Injury
is an injury where the skull stays intact. The rapid movement of the
head can be enough to significantly injure the brain. The brain can
be slammed into the inside of the skull and there may also be
rotational forces which cause shearing in the brain (see diffuse
axonal injury). There may be bleeding in the brain and swelling in
the brain will follow.
Open Head Injury
An Open Head Injury
may be the result of some object penetrating into the brain or the
skull being fractured by an impact. In the case of a penetrating wound
the injury is usually located at a focal point in the brain so very
specific identifiable problems will result. Gunshot wounds can cause
more extensive damage as they move within the skull and cause shock
waves inside the brain. Open head injuries leave the brain
susceptible for infection in addition to the damage to the brain
itself.
Coup Contrecoup
This is a French term
that describes the impact forces that can happen inside the brain.
For example, in a car accident the momentum of the vehicle when it
hits something may cause the brain to slam forward into the skull, the
coup, then the momentum shifts and the brain may be then slammed again
against the opposite side of the skull, the contrecoup. Both sites of
impact may cause damage to the brain.
Diffuse Axonal Injury
This term describes
the injuries are to axons located throughout the brain. Axons are
long thin nerve fibers that may extend across different layers of the
brain. As the head moves violently, as in a motor vehicle accident,
the brain may experience rotational forces and the axons may become
sheared. The shearing is made worse by the fact that the different
layers of the brain have different densities and react at different
speeds to the rotational force. The injured axons may also release
chemicals which can factor into increased swelling in the brain.
The resulting impacts
may be widespread and encompass a number of body systems and
functions. It is more difficult for doctors to initially assess the
impacts of a diffuse axonal injury than a focal injury.
Hematoma
A hematoma is a
collection of blood that has pooled. Surgery may be necessary to
remove the blood. Below are a few types of hematomas related to brain
injuries.
-
Subdural Hematoma - The brain is surrounded by a tough,
leathery outer covering called the dura. When the brain is injured
and blood accumulates within the space between the brain and the dura
it is called a subdural hematoma, or blood clot in the brain.
-
Epidural Hematoma - An epidural hematoma is when blood
accumulates within the space between the dura and the skull.

Disabilities resulting from a brain injury depend upon the severity of
the injury, the location of the injury, and the age and general health
of the patient. Some common disabilities include problems with
cognition (thinking, memory, and reasoning), sensory processing
(sight, hearing, touch, taste, and smell), communication (expression
and understanding), and behavior or mental health (depression,
anxiety, personality changes, aggression, acting out, and social
inappropriateness). (Source:
National Institute of Neurological Disorders and Stroke)

Brain injuries can commonly cause a number of communication related
deficits. Some are transient while others are permanent. Some of the
deficits may be as a result of the damage to particular communication
centers in the brain causing one or more forms of aphasia. Other
problems may be a result of motor problems or weaknesses caused by
other complications. Some people may have difficulty with the more
subtle aspects of communication, such as body language and emotional,
non-verbal signals. Communication disorders are complex and need to
be identified and treated by speech pathologists.
I can tell you from our personal experience that our daughter’s loss
of speech has been one of the cruelest parts of this ordeal. A
bubbly, outgoing 18 year-old girl who I used to kid all the time about
having the phone becoming physically attached to her ear has now been
silent for over four years. In addition to the fact that we miss her
being able to talk with us terribly, it also adds a lot more danger to
the situation in that she cannot tell us when anything is wrong.
There have been medical problems that have been made much worse
because she could not tell us something was wrong.
Aphasia
- Aphasia is an impairment of language, affecting the production or
comprehension of speech and the ability to read or write. There are
many types of aphasia and a person with a brain injury or stroke may
have one or more impacting their ability to communicate. Some of the
types of aphasia are described below. A Speech therapist can help
assess your loved one’s particular deficits and work to overcome
them.
Global Aphasia
– Patients suffering with global aphasia can produce few recognizable
words, understand little spoken language, and can neither read nor
write. In the less severe cases the patient may have symptoms
initially and then improve as they recover.
Broca's Aphasia
- With Broca's aphasia speech is very limited to short utterances
that are very halting and difficult. May be able to understand speech
and read, but limited in writing. Sometimes referred to as non-fluent
aphasia. Most patients are aware of these deficits and may become
extremely frustrated.
Wernicke's Aphasia
- People with Wernicke's Aphasia or fluent aphasia may speak in
flowing gibberish, drawing out their sentences with non-essential and
invented words. Many are unaware that they make little sense. Often
have trouble reading and writing.
Anomic Aphasia
- People with this form of aphasia have trouble finding words in
both speech and writing. They understand speech well, and in most
cases, read adequately.
Apraxia - Apraxia related to speech describes problems a
person may have producing speech particularly with articulation and
prosody. There is difficulty coordinating mouth and speech
movements. The errors are inconsistent.
Dysarthria - Dysarthria refers to a disorder where the
patient can think of the appropriate language, but cannot easily speak
the words because they are unable to use the muscles needed to form
the words and produce the sounds because of the neurological damage.
Speech is often slow, slurred, and garbled. May involve some or all
of the basic speech processes: respiration, phonation, resonance,
articulation, and prosody.
Swallowing Disorders – Swallowing seems like such an easy,
natural thing but it is actually very complex involving coordination
of a number of muscle groups. Problems with swallowing may be more
motor related but we have included it here because the Speech
Pathologist will be the therapist working to alleviate it. The Speech
Pathologist may recommend a fluoroscopic swallow study to identify
exactly where the problem lies. The therapist will then develop a
plan to overcome the deficits. It can be a very slow process but very
necessary in order to come off of the feeding tube.

Brain injuries can cause a number of movement disorders. In addition
since so many brain injuries happen as a result of accidents there may
be other injuries contributing to the movement disorder.
Paralysis - You are probably familiar with Quadriplegia and
Paraplegia. Another form of paralysis that is common with brain
injury victims is Hemipelegia which is paralysis to one side of the
body.
Spasticity - Spasticity is a condition in which certain
muscles are continuously contracted. This contraction causes stiffness
or tightness of the muscles and may interfere with movement, speech,
and manner of walking. Spasticity is usually caused by damage to the
portion of the brain or spinal cord that controls voluntary movement.
Treatment may include stretching, medications, and in some cases
surgery.
Apraxia - Apraxia is a movement disorder characterized by the
inability to perform skilled or purposeful voluntary movements,
generally caused by damage to the areas of the brain responsible for
voluntary movement.
Ataxia - Damage to a lower part of the brain, the cerebellum,
can affect the body's ability to coordinate movement, a disability
called ataxia, leading to problems with body posture, walking, and
balance.

Many brain injury victims suffer from cognitive disabilities which may
include the loss of higher level mental skills. People may be easily
confused or distracted and have problems with concentration and
attention.
·
Memory
The most common
cognitive impairment among brain injured patients is memory loss and
the partial inability to form or store new ones.
·
Executive Function
There may also be
problems with higher level, so-called executive functions, such as
planning, organizing, abstract reasoning, problem solving, and making
judgments, which may make it difficult to resume work or school
related activities.

Emotional problems that may surface include depression, apathy,
anxiety, irritability, anger, paranoia, confusion, frustration,
agitation, insomnia or other sleep problems, and mood swings. Problem
behaviors may include aggression and violence, impulsivity,
disinhibition, acting out, noncompliance, social inappropriateness,
emotional outbursts, childish behavior, impaired self-control,
impaired self-awareness, inability to take responsibility or accept
criticism, egocentrism, inappropriate sexual activity, and alcohol or
drug abuse/addiction.
Many TBI patients who show psychiatric or behavioral problems can be
helped with medication and psychotherapy. Family members of TBI
patients often find that personality changes and behavioral problems
are the most difficult disabilities to handle. (Source:
National Institute of Neurological Disorders and Stroke)
Many TBI patients have sensory problems, especially problems with
vision. Patients may not be able to register what they are seeing or
may be slow to recognize objects. Also, TBI patients often have
difficulty with hand-eye coordination. Because of this, TBI patients
may be prone to bumping into or dropping objects, or may seem
generally unsteady. TBI patients may have difficulty driving a car,
working complex machinery, or playing sports. Other sensory deficits
may include problems with hearing, smell, taste, or touch. Some TBI
patients develop tinnitus, a ringing or roaring in the ears. A person
with damage to the part of the brain that processes taste or smell may
develop a persistent bitter taste in the mouth or perceive a
persistent noxious smell. Damage to the part of the brain that
controls the sense of touch may cause a TBI patient to develop
persistent skin tingling, itching, or pain. Although rare, these
conditions are hard to treat.
(Source: National Institute of Neurological Disorders and Stroke)
The
Rancho Los Amigos National Rehabilitation Center created the scale
below to describe the progression a brain injury victim may take on
the path to recovery. Keep in mind not everyone displays all of these
behaviors. Some people may move through some of the phases very
quickly while others may spend longer periods at each level.
Levels of Cognitive
Functioning
Level I - No
Response: Total Assistance
-
Complete absence of observable change in behavior when
presented visual, auditory, tactile, proprioceptive, vestibular or
painful stimuli.
Level II -
Generalized Response: Total Assistance
-
Demonstrates generalized reflex response to painful stimuli.
-
Responds to repeated auditory stimuli with increased or
decreased activity.
-
Responds to external stimuli with physiological changes
generalized, gross body movement and/or not purposeful vocalization.
-
Responses noted above may be same regardless of type and
location of stimulation.
-
Responses may be significantly delayed.
Level III - Localized
Response: Total Assistance
-
Demonstrates withdrawal or vocalization to painful stimuli.
-
Turns toward or away from auditory stimuli.
-
Blinks when strong light crosses visual field.
-
Follows moving object passed within visual field.
-
Responds to discomfort by pulling tubes or restraints.
-
Responds inconsistently to simple commands.
-
Responses directly related to type of stimulus.
-
May respond to some persons (especially family and friends) but not to
others.
Level IV -
Confused/Agitated: Maximal Assistance
-
Alert and in heightened state of activity.
-
Purposeful attempts to remove restraints or tubes or crawl out
of bed.
-
May perform motor activities such as sitting, reaching and
walking but without any apparent purpose or upon another's request.
-
Very brief and usually non-purposeful moments of sustained
alternatives and divided attention.
-
Absent short-term memory.
-
May cry out or scream out of proportion to stimulus even after
its removal.
-
May exhibit aggressive or flight behavior.
-
Mood may swing from euphoric to hostile with no apparent
relationship to environmental events.
-
Unable to cooperate with treatment efforts.
-
Verbalizations are frequently incoherent and/or inappropriate to
activity or environment.
Level V - Confused,
Inappropriate Non-Agitated: Maximal Assistance
-
Alert, not agitated but may wander randomly or with a vague
intention of going home.
-
May become agitated in response to external stimulation, and/or
lack of environmental structure.
-
Not oriented to person, place or time.
-
Frequent brief periods, non-purposeful sustained attention.
-
Severely impaired recent memory, with confusion of past and
present in reaction to ongoing activity.
-
Absent goal directed, problem solving, self-monitoring
behavior.
-
Often demonstrates inappropriate use of objects without
external direction.
-
May be able to perform previously learned tasks when structured
and cues provided.
-
Unable to learn new information.
-
Able to respond appropriately to simple commands fairly
consistently with external structures and cues.
-
Responses to simple commands without external structure are
random and non-purposeful in relation to command.
-
Able to converse on a social, automatic level for brief periods
of time when provided external structure and cues.
-
Verbalizations about present events become inappropriate and
confabulatory when external structure and cues are not provided.
Level VI - Confused,
Appropriate: Moderate Assistance
-
Inconsistently oriented to person, time and place.
-
Able to attend to highly familiar tasks in non-distracting
environment for 30 minutes with moderate redirection.
-
Remote memory has more depth and detail than recent memory.
-
Vague recognition of some staff.
-
Able to use assistive memory aide with maximum assistance.
-
Emerging awareness of appropriate response to self, family and
basic needs.
-
Moderate assist to problem solve barriers to task completion.
-
Supervised for old learning (e.g. self care).
-
Shows carry over for relearned familiar tasks (e.g. self care).
-
Maximum assistance for new learning with little or nor carry
over.
-
Unaware of impairments, disabilities and safety risks.
-
Consistently follows simple directions.
-
Verbal expressions are appropriate in highly familiar and structured
situations.
Level VII -
Automatic, Appropriate: Minimal Assistance for Daily Living Skills
-
Consistently oriented to person and place, within highly
familiar environments. Moderate assistance for orientation to time.
-
Able to attend to highly familiar tasks in a non-distraction
environment for at least 30 minutes with minimal assist to complete
tasks.
-
Minimal supervision for new learning.
-
Demonstrates carry over of new learning.
-
Initiates and carries out steps to complete familiar personal
and household routine but has shallow recall of what he/she has been
doing.
-
Able to monitor accuracy and completeness of each step in
routine personal and household ADLs and modify plan with minimal
assistance.
-
Superficial awareness of his/her condition but unaware of
specific impairments and disabilities and the limits they place on
his/her ability to safely, accurately and completely carry out his/her
household, community, work and leisure ADLs.
-
Minimal supervision for safety in routine home and community
activities.
-
Unrealistic planning for the future.
-
Unable to think about consequences of a decision or action.
-
Overestimates abilities.
-
Unaware of others' needs and feelings.
-
Oppositional/uncooperative.
-
Unable to recognize inappropriate social interaction behavior.
Level VIII -
Purposeful, Appropriate: Stand-By Assistance
-
Consistently oriented to person, place and time.
-
Independently attends to and completes familiar tasks for 1
hour in distracting environments.
-
Able to recall and integrate past and recent events.
-
Uses assistive memory devices to recall daily schedule, "to do"
lists and record critical information for later use with stand-by
assistance.
-
Initiates and carries out steps to complete familiar personal,
household, community, work and leisure routines with stand-by
assistance and can modify the plan when needed with minimal
assistance.
-
Requires no assistance once new tasks/activities are learned.
-
Aware of and acknowledges impairments and disabilities when
they interfere with task completion but requires stand-by assistance
to take appropriate corrective action.
-
Thinks about consequences of a decision or action with minimal
assistance.
-
Overestimates or underestimates abilities.
-
Acknowledges others' needs and feelings and responds
appropriately with minimal assistance.
-
Depressed.
-
Irritable.
-
Low frustration tolerance/easily angered.
-
Argumentative.
-
Self-centered.
-
Uncharacteristically dependent/independent.
-
Able to recognize and acknowledge inappropriate social interaction
behavior while it is occurring and takes corrective action with
minimal assistance.
Level IX -
Purposeful, Appropriate: Stand-By Assistance on Request
-
Independently shifts back and forth between tasks and completes
them accurately for at least two consecutive hours.
-
Uses assistive memory devices to recall daily schedule, "to do"
lists and record critical information for later use with assistance
when requested.
-
Initiates and carries out steps to complete familiar personal,
household, work and leisure tasks independently and unfamiliar
personal, household, work and leisure tasks with assistance when
requested.
-
Aware of and acknowledges impairments and disabilities when
they interfere with task completion and takes appropriate corrective
action but requires stand-by assist to anticipate a problem before it
occurs and take action to avoid it.
-
Able to think about consequences of decisions or actions with
assistance when requested.
-
Accurately estimates abilities but requires stand-by assistance
to adjust to task demands.
-
Acknowledges others' needs and feelings and responds
appropriately with stand-by assistance.
-
Depression may continue.
-
May be easily irritable.
-
May have low frustration tolerance.
-
Able to self monitor appropriateness of social interaction with
stand-by assistance.
Level X - Purposeful,
Appropriate: Modified Independent
-
Able to handle multiple tasks simultaneously in all
environments but may require periodic breaks.
-
Able to independently procure, create and maintain own
assistive memory devices.
-
Independently initiates and carries out steps to complete
familiar and unfamiliar personal, household, community, work and
leisure tasks but may require more than usual amount of time and/or
compensatory strategies to complete them.
-
Anticipates impact of impairments and disabilities on ability
to complete daily living tasks and takes action to avoid problems
before they occur but may require more than usual amount of time
and/or compensatory strategies.
-
Able to independently think about consequences of decisions or
actions but may require more than usual amount of time and/or
compensatory strategies to select the appropriate decision or action.
-
Accurately estimates abilities and independently adjusts to
task demands.
-
Able to recognize the needs and feelings of others and
automatically respond in appropriate manner.
-
Periodic periods of depression may occur.
-
Irritability and low frustration tolerance when sick, fatigued
and/or under emotional stress.
-
Social interaction behavior is consistently appropriate.
Original Scale co-authored by Chris Hagen, Ph.D., Danese Malkmus,
M.A., Patricia Durham, M.A. Communication Disorders Service, Rancho
Los Amigos Hospital, 1972. Revised 11/15/74 by Danese Malkmus, M.A.,
and Kathryn Stenderup, O.T.R.

There are other measurement scales
used by the professionals. To read more about them you can visit the
Center on Outcome Measurement in Brain Injury Web site at: http://www.tbims.org/combi/
Traumatic Brain Injury (TBI) is a leading cause of death and
disability among children and young adults in the United States. Each
year, an estimated 1.5 million Americans sustain a TBI. That's 8 times
the number of people diagnosed with breast cancer and 34 times the
number of new cases of HIV/AIDS each year. (1) As a consequence:
-
50,000 people die each year. (2)
-
230,000 people are hospitalized annually and survive. (2)
-
80,000 to 90,000 people experience the onset of long-term
disability each year. (2)
-
The cumulative result is that today an estimated 5.3 million
people - 2% of the U.S. population - are living with a permanent TBI-related
disability. (1)
The risk is highest among adolescents, young adults, and persons older
than 75 years. The risk to males is twice the risk among females. (2)
The major causes of TBI are:
-
Motor vehicle crashes are a leading cause, accounting for 50%
of all TBIs and the leading cause of TBI resulting in hospitalization.
(2)
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Violence, especially suicidal behavior and assaults that
involve firearms--the leading cause of TBI-related death. (2)
-
Falls--the leading cause of TBI among the elderly. (2)
These injuries have both short-term and long-term effects on
individuals, their families, and society and the financial cost is
enormous. TBIs requiring hospitalization cost the nation about $56.3
billion each year. Approximately 1 in 4 adults with TBI is unable to
return to work one year after injury. The financial cost is only part
of the burden. The long-term impairments and disabilities associated
with TBI are grave and the full human cost is incalculable. (1)
(1) Source: CDC - The Injury Fact Book 2001–2002. A publication of
the National Center for Injury Prevention and Control, Centers for
Disease Control and Prevention. November 2001.
(2) Source: Traumatic Brain Injury in the United States: A Report to
Congress. Prepared by: Division of Acute Care, Rehabilitation
Research, and Disability Prevention, National Center for Injury
Prevention and Control, Centers for Disease Control and Prevention,
U.S. Department of Health and Human Services. December 1999
For more information there are numerous sites on the Web including the
following from the National Institute of Neurological Disorders and
Stroke.
http://www.ninds.nih.gov/health_and_medical/pubs/TBI.htm
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